Brain on Fire My Month of Madness Susannah Cahalan 9781451621372 Books
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Brain on Fire My Month of Madness Susannah Cahalan 9781451621372 Books
I will be forever grateful to Susannah Cahalan for writing this book. It was brought to my attention by a friend and reading it was what lead us to a diagnosis of Autoimmune Encephalitis for my son. This neurological disease has only been identified in the past twelve years and is not widely understood. It is often misdiagnosed as mental illness due to the neuro-psychotic nature of some of the symptoms. The six months proceeding my son's diagnosis were their own kind of hell, and I am not being mellow dramatic when I say that in writing this book, Susannah gave my son his life back. Without it I have no doubt that he would have been institutionalized.If you have any interest in the brain, medicine, or just enjoy a good medical drama please read this book. Not only is it a gripping medical story, but it raises awareness of an obscure and difficult to diagnose neurological disease. We need all the help we can get to raise awareness of Autoimmune Encephalitis and reading this book is a great place to start. Thank you from the mother of an Autoimmune Encephalitis warrior
Tags : Brain on Fire: My Month of Madness [Susannah Cahalan] on Amazon.com. *FREE* shipping on qualifying offers. <b>A gripping memoir and medical suspense story about a young New York Post</i> reporter’s struggle with a rare and terrifying disease,Susannah Cahalan,Brain on Fire: My Month of Madness,Free Press,145162137X,Autoimmune diseases;Patients;United States;Biography.,Encephalitis;Patients;United States;Biography.,Frontal lobes;Diseases;Patients;United States;Biography.,Autoimmune diseases,BIOGRAPHY & AUTOBIOGRAPHY Medical (incl. Patients),BIOGRAPHY & AUTOBIOGRAPHY Personal Memoirs,BIOGRAPHY AND AUTOBIOGRAPHY,Biography,Biography & Autobiography,Biography Autobiography,BiographyAutobiography,Diseases,Encephalitis,Frontal lobes,GENERAL,General Adult,IMMUNOLOGICAL DISORDERS,MEDICAL Diseases,Medical - General,Non-Fiction,Patients,Personal Memoirs,Susannah Cahalan, Brain on Fire, Auto-immune disorder, medical mystery, non-fiction, memoir, diagnosis, memory, bestseller, award-winning, psychosis, madness, anti-nmda-receptor encephalitis,United States
Brain on Fire My Month of Madness Susannah Cahalan 9781451621372 Books Reviews
Susannah Cahalan’s book should be required reading for every med school student, clinical psych major and any other front line profession (like teachers) who may encounter – not just NDMA-receptor autoimmune encephalitis – but any other rare disease that defies accurate diagnosis and treatment. At one level this book is a dire warning about the frequency with which symptomology is often forced into pre-conceived categories by medical professionals out of the toxic combination of arrogance, laziness and ignorance, and when those categories don’t match up precisely, how common the search for accurate diagnosis is sacrificed to a diagnosis that ends in NOS – Not Otherwise Specified. Cahalan makes the point that without a relentless physician, she herself would probably be now institutionalized or dead. She stresses that her “cure” represents a likely minority of patients who will never be properly diagnosed or treated and toward the end of the book she takes “Survivor Guilt” head on. Her unflinching self revelations are not entirely what make this account so worthwhile, though she writes without a shred of self pity or maudlin retrospection, (like the very best journalists often do). One of the most compelling features of this memoir is the brilliantly subtle deconstruction of human experience into all the elements - emotion, behavior, and thought, and how significant, even critical to “health” the integration of these functions is. It is a stunning reflection on the very notion of “self” and a remarkably honest disclosure about family and human relationships and the frailty of both. Stylistically the book bears the unmistakable mark of an accomplished journalist, and, If you are a fan of Cheryl Strayed, John Krakauer and Sebastian Junger you will love this book. Unlike Strayed, Krakauer and Junger however, whose "places" were the Pacific Crest, the Alaskan wilderness or the mountains of Afghanistan respectively, Cahalan's journey is the unfathomable complexity of human biology and psychology. It is perhaps the most daunting terrain to visit let alone report on. She does it very well.
"Brain on Fire My Month of Madness" should be required reading for everyone in the health care profession- especially neurologists. This past April, 2017, my 18 year old granddaughter, Alysa, after having had seizures, spent 2 weeks in the hospital; MRI's, CT-scans, EEGs and blood work came back normal. Slowly, she became unable to read, to eat, to speak. Slowly, she "descended into madness", becoming violent and hallucinating. In the very beginning of her illness, my daughter-in-law, Gretchen, through research, texted me to have the doctors consider "anti-NMDA receptor autoimmune encephalitis". At the same time, my sister-in-law, Downey, wrote to tell me of this book. Nope. None of the doctors at the first hospital had a clue about it. On April 14th, Alysa was transported to Chapel Hill, NC Neuroscience Hospital. (I requested the information about the anti NMDA receptor autoimmune encephalitis be forwarded with her records) One month before Alysa's illness, a young woman was the first to be diagnosed with this disease at Chapel Hill. Working with The Mayo Clinic, doctors at CH acquired an infusion- which almost immediately reversed Alysa's psychotic symptoms! She is still recovering and will need more infusions and therapy. Susannah's book has not only given us insight into what was a horrific nightmare for our family, it has also validated getting a second (third or fourth) opinion when a patient's condition is not improving. Thank you, Susannah! I hope you have made a complete recovery by now.
I work in the field of mental health with individuals who suffer with persistent metal illnesses such as schizophrenia, bipolar and major depression. This book has me questioning so much, and thinking about clients who should have been tested for auto immune disorders. I'm questioning everything. I work as a care manager and one of my main goals is to facilitate communicating among providers...psychiatrists, primary care doctors, neurologists, etc. Since reading this, I have placed an even higher value on that role. Susannah's story taught me how vital it is to not take things at face value and to encourage discussion among professionals caring for someone in the throes of a severe illness.
I will be forever grateful to Susannah Cahalan for writing this book. It was brought to my attention by a friend and reading it was what lead us to a diagnosis of Autoimmune Encephalitis for my son. This neurological disease has only been identified in the past twelve years and is not widely understood. It is often misdiagnosed as mental illness due to the neuro-psychotic nature of some of the symptoms. The six months proceeding my son's diagnosis were their own kind of hell, and I am not being mellow dramatic when I say that in writing this book, Susannah gave my son his life back. Without it I have no doubt that he would have been institutionalized.
If you have any interest in the brain, medicine, or just enjoy a good medical drama please read this book. Not only is it a gripping medical story, but it raises awareness of an obscure and difficult to diagnose neurological disease. We need all the help we can get to raise awareness of Autoimmune Encephalitis and reading this book is a great place to start. Thank you from the mother of an Autoimmune Encephalitis warrior
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